#iamnamira

Dear All,

In order to reach out to more people, imageendometriosistersinsg is now active only in INSTAGRAM by the username: iamnamira

Lets get connected there!

Thanks to Bonda Bedah & Mak Temah for the vid! Superb!

Endometriosis Support Group

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Here is a support group that has been helping me all this while. I would not know who to seek for proper Endo care if its not for their advices and guidance.

I am lucky to have come across their page and get my medical issues properly attended. At the same time they have always been there to keep my sanity in tact in situations where nothing clearly make any sense.

I address them as my sisters, cause despite our cultural and background differences, we have each others back for motivation and encouragement.

I highly recommend sufferers alike to join the page and utilize the useful informations shared.

I cant thank them enough, especially Nancy Peterson herself for her unyielding contributions to this committee until it becomes this big yet unified in the same purpose, creating awareness.

#activist #singapore #endoawareness #excision #endometriosisters #endometriosistersinsg #endometriosis #chronicpain #awareness #invisibleillness #yellowforendo #heal #support #love
#surgery #endometrioma #laparoscopy #fightlikeagirl #adenomyosis #igsg #fitness #gymboxx #muscle #abs #courage #weightlifting #focus #determination #wellness #health

Featured in Berita Harian!

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https://www.facebook.com/notes/myra-valora/endometriosis-bh-article/572412886201437

This article is dated 09/07/2014, Wednesday.

Written by Mr. Farid Hamzah of Berita Harian/Berita Minggu.

I finally translated it in a simplified version. Alhamdulillah. Do spread the awareness around. 🙂

IG: #endometriosistersinsg

THE ACTUAL ARTICLE IN MALAY

Sakit Rahim Begitu Keterlaluan Hingga Pengsan

Anak bongsu dua beradik tidak tahu punca derita endometriosis

Senaman dan angkat berat merupakan amalan biasa bagi Cik Namira Mohamad Marsudi sejak tiga tahun lalu. Namun, di sebalik tubuh yang berotot itu, timbul masalah kesihatan yang telah lama membelenggu gadis 28 tahun itu.

Setiap kali terasa sakit di bahagian rahim atau ususnya, Cik Namira pasti menghadapi kesukaran bergerak ke mana-mana. Masalahnya begitu teruk sehinggakan beliau pernah pengsan- baik di rumah mahu pun di luar.

Biasanya, masalah tersebut akan timbul seminggu sebelum datang haidnya dan akan menjadi lebih teruk pada tiga hari pertama gadis itu kedatangan haid.

Yang pasti, rasa sakitnya itu sama seperti sakit senggugut yang dialami ramai wanita yang kedatangan haid. Sebaliknya, ia merupakan penyakit endometriosis- satu keadaan di mana sel-sel daripada lapisan rahim yang biasanya keluar sebagai darah haid dalam setiap putaran haid, membiak dalam kawasan luar rahim.

“Apabila masalah ini timbul, Tuhan sahaja yang tahu betapa sakitnya bahagian rahim, pinggul atau usus saya.

“Malah, belakang tubuh juga terasa sakit selain tubuh mudah penat,” jelasnya

Menurut anak bongsu dua beradik itu lagi, meskipun masalah itu dikesan dua tahun lalu, beliau berasakan hal itu telah dihadapinya sejak 10 tahun lalu.

Malangnya, sepanjang tempoh itu beliau hanya mengambil ringan masalah tersebut kerana menyangka ia sama seperti yang dialami ramai wanita lain.

Disebabkan beliau tidak mempedulikan masalahnya itu, keadaan menjadi semakin serius.

“Sebab terlalu sakit, saya pernah pengsan semasa di stesen MRT, dan semasa menuju ke klinik.

“Tapi kalau pengsan di rumah itu sudah berulang kali ia berlaku,” jelas kakitangan sumber manusia di sebuah syarikat itu lagi.

Akibatnya, beliau kerap mengambil cuti sakit.

“Sehinggakan saya telah diberhentikan kerja sebelum bekerj di tempat baru ini akibat masalah kesihatan saya itu,”katanya lagi.

Sehingga kini Cik Namira masih tidak tahu punca sebenar masalah tersebut yang sudah berada di tahap paling serius dan menyatakan bahawa ibu atau kakaknya langsung tidak mengalaminya.

“Ia tidak akan menjadi seburuk ini sekiranya saya mendapatkan rawatan daripada pakar yang benar-benar tahu akan masalah ini,” katanya lagi.

Endometriosis merupakan sejenis penyakit yang menjejas sekitar 10 peratus wanita.

Sehingga 30 peratus wanita mengadu terasa sakit semasa kedatangan haid dikesan menghidap endometriosis.

Namun, penyakit itu biasanya tidak dikesan kerana ia juga mungkin wujud di kalangan wanita yang mengalami petanda lain yang tiada kaitan dengan masalah haid atau kurang rasa tidak selesa semasa kedatangan haid.

Pakar perbidanan di Hospital Raffles, Dr Jazlan Joosoph, berkata endometriosis hanya menjejas kaum wanita dalam oeringkat usia reproduktif iaitu sejak usia mulanya akil baligh hingga ke usia menopos.

“Penyakit endometriosis boleh dibandingkan dengan penyakit barah.

“Ia boleh membiak, merebak dan membinasakan selain memusnahkan organ-organ reproduktif wanita seperti saluran telur dan ovari

“Lantaran itu, penyakit endometriosis berkait rapat dengan ketidaksuburan,” katanya.

Dr Jazlan menambah punca penyakit endometrisis masih menjadi tanda tanya.

Menurutnya, terdapat beberapa teori mengenai asal usul penyakit tersebut, namun puncanya dan mengapa ia berlaku masih tidak jelas.

Yang jeals ialah hanya berlaku apabila hormon-hormon seks wanita aktif di dalam tubuh, katanya lagi.

Endometriosis menyakitkan, kata Dr Jazlan lagi.

“Kesikatan yang dirasai boleh berbentuk senggugut atau sakit semasa haid (dysmenorrhea), sakit semasa bersatu atau dyspareunia, sakit semasa buang air kecil atau dysuria, sakit semasa buang air besar atau dyschezia dan sakit di bahagian pelvis dan pinggul tanpa sebarang sebab atau punca yang jelas (chronic pelvic pain).

“Penyakit endometriosis tahap lanjut boleh menyebabkan masalah ketidaksuburan atau kemandulan,” ujar Dr Jazlan lagi.

Sementara itu, bagi mengatasi rasa sakitnya, Cik Namira berkata beliau diberi ubat pelali sakit.

“Tapi saya tidak boleh bergantung pada ubat pelali sahaja.

“Sebagai satu cara untuk mengatasi rasa sakit, saya banyakkan bersenam selain memantau diet pemakanan.

“Inila satu cara saya hilangkan rasa sakit itu dengan menumpukan segala tenaga kepada senaman termasuk angkat berat,”ujarnya lagi.

Fakta Endometriosis

– Penyakit endometriosis adalah satu keadaan di mana sel-sel daripada lapisan rahim, yang biasanya keluar sebagai darah haid dalam setiap putaran haid, membiak dalam kawasan luar rahim.

– Tompok-tompok endometriosis boleh terdapat di saluran telur, ovari, usus, pundi kencing dan dinding pelvis.

– Dalam keadaan yang agak teruk, tompok-tompok endometriosis boleh merebak jauh sehingga organ otak, mata dan paru-paru.

– Jika ia membiak di organ ovari, maka kista endometriosis atau endometriotic cysts boleh terbentuk.

– Dalam tahap awal, penyakit endometriosis tidak menimbulkan sebarang simptom. Ia boleh menyepi selama bertahun-tahun.

– Pada tahap lanjut, penyakit endometriosis boleh menyebabkan pelbagai simptom dan rata-rata petanda sejagat yang berkaitan dengan endometriosis ialah sakit.

– Faktor-faktor risiko yang berkaitan dengan endometriosis adalah:

1) Wanita yang belum pernah hamil;

2) Sejarah penyakit serupa dalam keluarga terutama ibu, adik-beradik perempuan atau mak cik;

3) Sebarang masalah kesihatan yang menyekat pengaliran darah haid secara sempurna;

4) Jangkitan di bahagian pelvis tidak kira sama ada berhubungan atau tiada hubungan dengan kegiatan seks atau

5) Masalah kecacatan rahim.

TRANSLATED VERSION IN ENGLISH

Pelvic Pain So Severe It Leads To a Series of Fainting Incidents

The youngest of two siblings do not know what causes her chronic illness

Lifting weights has been her fitness regime since three years ago. But behind those flexed muscles, lies a body that has been battling stage 4 Endometriosis.

When the pain hits, it is difficult for the 28 year old to move around.

It is so severe that she’d fainted- at home and in public.

Usually this extreme pain arises a week before her cycle up to her third day of period.

It is unusual what deem as normal in the social context for women suffering from ‘dysmenorrhea’ is actually one of the symptoms of Endometriosis.

Endometriosis is a condition in which the endometrium abnormally develops outside of the uterus.

“Only God knows how horrible it is. The pain is not just at the pelvic, but everywhere else; my back, bowel and I have extreme exhaustion too,” she explained.

Ms. Namira mentioned that although she is diagnosed only two years ago, she always knew that something is wrong even at the young age of 18.

However, she has dismissed it thinking the pain is a common trait during menstruation as what many were told.

Due to this ignorance, her condition worsens.

“It is so severe I ever fainted in the train station and also when I was rushing to the clinic for immediate medical attention. Several fainting incidents happened at home too,” said the Human Resource officer.

This causes her to take medical leave often.

“To the extent I was terminated by my previous employer,”she added.

Until now Ms. Namira does not know the cause of this disease as none of her family members are effected by it.

“It will not have develop to this stage if there is an awareness on a proper Endometriosis care,” she exclaimed.

1 out of 10 women suffers from Endometriosis of which 30% complained of having dysmenorrhea suffer from Endometriosis as well.

Unfortunately, patients are usually misdiagnosed because the symptoms overlap with other medical conditions.

Dr. Jazlan Joosoph, a gynecologist from The Raffles Hospital explained that Endometriosis effects women who are in their reproductive age all the way to menopausal state.

“This chronic illness is adjacent to cancer in a sense that it can grow, spread and damage the reproductive organs such as the fallopian tube and ovaries. Therefore it can cause infertility.”

Dr. Jazlan mentioned that there is no concrete reason yet to what causes it except for some shady theories. What’s ascertain is that, it causes debilitating pain.

“The detrimental pain can commonly be identified in four areas; dysmenorrhea (extreme pain during menstruation), dyspareunia (pain during/after intercourse), dysuria (pain when urinate), dyschezia (pain when passing motion) and significantly chronic pelvic pain.”

For Ms. Namira, lifting weights has provide her with an escape route from her daily pangs. She feels that relying only on painkillers is not enough as it is damaging to her body in the long run. Keeping a healthy lifestyle is just as important in improving her chances for a better quality of life.

#activist #singapore #endoawareness #excision #endometriosisters #endometriosis #chronicpain #awareness #invisibleillness #yellowforendo #heal #support #love
#surgery #endometrioma #laparoscopy #fightlikeagirl #adenomyosis #igsg #fitness #gymboxx #muscle #abs #courage #weightlifting #focus #determination #wellness #health

IG: #endometriosistersinsg

Officializing #endometriosistersinsg on this blessed Friday. The plan is to take as many photos of people holding on to this banner and upload it to the official #endometriosistersinsg IG. The people who participate in this awareness just need to tag anyone they know who might be suffering or would benefit from this awareness. This way the chain of support continues.

So lovelies, I might just approach you for a snap! Put on your best smile yup!!

See you in IG!

#endometriosisters #endometriosistersinsg #endometriosis #chronicpain #awareness #invisibleillness #yellowforendo #heal #support #love

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PMS

It’s around a week plus from my supposed menstruation cycle and I called it The Phase 3.

I am already feeling lethargic all the time and my mood swings are very bad. Especially with the current affair I am in. We have plans for this weekend but he has to cancel it cause ‘something came up’ thus decided to disappear on me. It’s hurtful. Though this is not the first time, the pain doubles everytime. Nothing seems to cheer me up now.

Sometimes I wonder, what difference does it make? The sadness in my eyes, the heartaches are all still there. In fact I cried more now compared to any period of my life before.

My pee has been brown the past 4 days. Worryingly. Despite drinking two litres of water last night it still came out the same only lighter. I do not know if its Endo related.

PMS and weekend wasted all thanks to you. You keep breaking my heart time and time again. I am suffering just to stay ‘invisible’.

When Silence Speaks Volume

I am wounded for the set of events that happened to me the past months particularly this month of May. The reason why I have not been ranting is because it was just too much too soon. I am grateful that my career progression has been smooth sailing but the demands of it without proper guidance are overwhelming. It just does not make sense. But I swim through.

Then the shock from a strong instinct to go for a second opinion as suggested by my Endometriosis Sisters chat group. I was recommended to meet up Dr. Peter Barton Smith for my extended pain. Looking at his profile, he is no doubt a skilled surgeon particularly in handling Endometriosis. I was hopeful he is able to shed some light on my alarming escalating monthly pain especially on my left abdomen. True enough, I have Endometriomas on my bowel and bladder, having reached stage 4 of its severity. The most disappointing part was when I was told that nothing is being done on my Endometriosis issues during the 6 surgical procedures I had last year. I am totally stunned!

So here it goes again, battling it up on my own. And I am cut again deep.

When Silence Speaks Volume

Endometrisosis: Bad Food vs Good Food (Project)

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I posted this on my facebook status around a month ago because I was curious and out of my wit. I am wondering since there is no substantial remedy out there to help me sail through my predicament with Endometriosis & Irritable Bowel Syndrome, I should just give it a shot.

I changed my lifestyle completely from 20th December 2013, refusing all that worked for my body thus far. I was chomping on fried food, fast food, gravy with massive sodium intake, sugary tidbits, creamy delicacies, cheesy morsels, you name it, and I eat them all. Although I enjoyed tantalizing my palette with these treats, the aftermath was extremely bad. It was so bad that I was reliant on Arcoxia almost daily and my tract was acting up horribly that I’d be on bed until mid-day before I would be able to resume normal activities. I was spotting & bleeding three weeks in a row and cringing in bed most of the time. Alarmingly, I had to be taken to A&E. I was put on a drip and given a jab of Tramadol & Metoclopramide. It was not surprising that TTSH gave me another dosage of Mefenamic to counter heavy bleeding. Ever since the switch of dietary regime & activity level, topping that off with unloading of Visanne, I have not been feeling any greater than before I started it.

A month on this experiment, I was startled when Arcoxia no longer works wonders. I had to quit my job and administer these issues right away. The general practitioner gave me two more medicines (Dhacopan & Panaco) to be taken with Arcoxia and these just put me to sleep the whole day. Realizing that the severity escalated, I decided to abandon ship and resume my previous lifestyle with immediate effect.

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Two weeks on board and I’ve felt tremendous improvement. Aside from slowly sliding back to my previous physical & fitness achievement, most notably, pain subsided instantly by day one itself. My stomach is less bloated, nauseous deaden, pelvic pain bearable, chills & aches reduced. The best part is feeling under control again especially emotionally. I am able to handle a full time job again. Everything is falling back into place.

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This experiment opened my eyes how food place a huge importance in aiding recovery. What you put down your gullet can either be a cure or a poison depending on your choices. So far Endo Diet has done justice to my body but I had to tweak some of it since they are bad for my Irritable Bowel Syndrome. One example is how nuts are essential in Endo Diet but a huge no-no for Irritable Bowel Syndrome sufferers.

My belief stands firmly on the perception that there are no two bodies alike. Whatever diets out there only serve as a platform to guide you along the way. Eventually you have to listen to your body, take note of how it effects you and diminish whatever that does not work for you. Discover what your ‘Sweet Spots’ are and your journey towards managing pain would be less of a hassle. This coupled with an active lifestyle will set you well on attaining holistic wellness.